People with genetic diseases are respected and supported in an inclusive society.
To facilitate support for those affected directly or indirectly by genetic conditions throughout Australia.
Statement of Purpose
Genetic Alliance (GA) is a not for profit company that works with and supports people who are affected directly or indirectly by rare genetic conditions/diseases throughout Australia.
The objective of GA is to improve quality of life of its clients and families by facilitating access to individual support groups and providing a contact point for families who are affected by genetic conditions/diseases so rare that they do not have their own support group.
GA is committed to working to an agreed organisational vision and set of values, and to using these to inform our planning and service delivery. The documented statement of the vision and values of GA guides the way the organisation approaches its work and provides a clear picture of GA's aims and philosophy.
- Provide a contact point for families who are affected by genetic conditions so rare that they do not have their own support group
- Facilitate access to individual support groups for those families with particular genetic disorders
- Provide a forum for the exchange of information between support groups regarding available community services
- Educate the medical and allied health professionals and the community about genetic disorders
- Consult with government bodies, both Federal and State, for appropriate funding for genetic services.
Philosophy & Principles
The service provided by GA is flexible and responds wherever possible to the changing needs of its client group as they are expressed by clients, referrals, families, and other organizations/institutions (government and non-government) that are working with their clients. While Counsellors are essentially accountable to our clients we also strive to work in close co-operation with their families in order to maximise their access to information and support.
This will be achieved by promoting:
- The clients right to access information and support
- The right to confidentiality and privacy
- The right to access resources in the community that may assist them
- The right to decide on the type of support that suits them (e.g. teleconferencing or contacting other families/clients who have the same genetic condition/disease)
- The right of to access services on a non-discriminatory basis
- The right to access support services in the community which are operated under identified best practice guidelines
- The right to accountable and responsive services
Call on +61 2 9295 8359 for more information.