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NEDAMSS

Contact:
Email:	irf2bplhamburg@gmail.com
Website	Click here
About:	Neurodevelopmental disorder with regression, abnormal movements, Loss of speech and seizures. Also know as IRF2BPL disorder.
Useful links:	Lina Paulsen and Jens Kiefer are parents who have set up support for other families affected directly or indirectly by this condition.

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