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Making the right connections since 1988

Genetic Alliance Australia is a peak umbrella group for rare genetic conditions/diseases, so rare they do not have their own support group.

Genetic Alliance Staff

Jan Mumford

Executive Director

Jan’s work with genetics and families is from the hope it offers as well as the challenges this new information gives. Jan has a varied background in large telecommunications organisations and small business WHS consultancy. She has recently completed a BSocSc (Sociology) to round out the background of her work. Her work with research groups provides a community perspective, promoting the health and support needs of those affected. At the state and federal levels, Jan has worked with peak advocacy groups for improved services and provided feedback on government policy and procedures. Jan’s experience and background strengthens Genetic Alliance support for families at all stages of a diagnosis as well as a community voice at state and federal levels.

Victoria Warn

Project Manager & Associate Genetic Counsellor

Victoria is an Associate Genetic Counsellor at Liverpool Hospital with over 10 years’ experience in the field of Medical Science. Victoria has been involved with various support organisations and has a strong interest in rare genetic conditions and prenatal genetics and genomics. Victoria has had 3 years’ experience as an Event Producer and Relationship Manager.

B Med Sci (UTS), MGC (UTS)

Genetic Alliance Board Members

Trish Rymer

Education Consultant, Westmead Children's hospital and Online Training Australia

Since March 2020 Trish has been working independently in education consultation in disability and inclusion. Trish is the education consultant for Online Training Australia and works with education systems and schools across the country. She is also an education consultant on autism focussed projects with Westmead Children’s Hospital.
Trish’s professional background is in teaching, disability education and inclusion with a strong focus on professional learning and quality assurance and its impact on student outcomes. Trish has been living in Australia with her family since 2005.
Trish is fully accredited with NESA (NSW Education Standards Authority) and recognised as a qualified teacher with the NSW Department of Education.
Trish was a volunteer leader and organiser with a national charity that provided inclusive social and educational opportunities for over 15 years; leading youth groups, holidays and play schemes for children and young people both with and without disabilities.

Alberto Piccenna

Client Director, International Brokerage

Alberto is approaching 20 years’ experience in the Financial Services sector, specialising in Insurance.
Alberto has worked in Europe, the UK and since 2011, Australia.
Currently Alberto is a Client Director for an international brokerage firm and has been directly involved in the design, review and evaluation of Insurance programs for different types of companies, including non-for-profits as well as multinational, publicly listed entities, working across different segments such as medical, education and IT. Alberto holds a Bachelor’s of Economics, with majors in Insurance and Risk Management.
Alberto is a proud father of 2 girls, one with a rare genetic condition.

Bonnie Corbin

Head of Policy, Marie Stopes Australia

Bonney Corbin is an urban planner with postgraduate qualifications in gender and public policy. She is Head of Policy at Marie Stopes Australia and Chair of the Australian Women’s Health Network. Bonney has worked at the intersections of human rights and determinants of health for the past 15 years in various parts of Asia, Australia, Europe and the South Pacific. She has a number of genetic mutations including BRCA1 and is personally involved with various community advocacy projects on health equity and health justice.

Wendy Bruce

Executive Officer of Fragile X Association

Wendy is Executive Officer of Fragile X Association, a member-based not-for-profit organisation supporting individuals with Fragile X-associated conditions and their families. Wendy has worked with community-based support groups for a number of years, and in her early career worked with professional services firms as an information manager.

Wendy has a B Soc Sci (Lib).

Dr Jane Fleming

Lecturer & Associate Genetic Counsellor

Jane is a research manager at the Royal North Shore Hospital Department of Clinical Genetics and an associate genetic counsellor. She has an interest in inherited genetic conditions and has previous research experience studying deafness genes and gene therapy for the treatment of a neuro-degenerative condition. Jane’s research interests include personal genome testing, inherited eye conditions, prenatal testing and genetic counselling.

Kate Dunlop

Director, Centre for Genetics Education

Kate is the Director of the Centre for Genetics Education NSW Health. She has worked in education in the health setting for over 25 years and has wide experience in program management, resource development and educating health professionals as well as students, patients and the community generally. Her particular interests include familial cancer, public health genetics including family health history, screening and evaluation, and communication skills training. Kate has a BAppSc(Nurs), DipEd(Adult) and a MPH(USYD), and is a Clinical Lecturer, Sydney Medical School- Northern, University of Sydney.

Lizzy Harnett

Executive Director AWCH

Lizzy is the Executive Director for the Association for the Wellbeing of Children in Healthcare (AWCH). AWCH is a national NFP organisation of consumers and health professionals advocating for the wellbeing of children, young people and their families in healthcare.
Lizzy has a B.App.Sc (Physiotherapy) and has worked as a children’s physiotherapist in the acute, community and school based settings. In 2001, Lizzy moved from Director of Physiotherapy into health management and established the Clinical Governance Unit (CGU) at The Children’s Hospital at Westmead (CHW) where she continued as Director of the CGU until late 2013. Lizzy has a passion for partnering with consumers in improving healthcare and is on a number of state and national committees focussing on the wellbeing of children and young people.

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